Collaboration. Innovation. Impact. Annual Review 18/19 Contents 01 A Message from the Foundation 02 The Foundation and Who We Support 03 Year in Review Highlights 04 Financial Summary 05 Thank You 06 The Stan Perron Centre of Excellence for Childhood Burns 08 Paediatric Systems Biology Centre, a Collaboration with the Telethon Kids Institute – Enabling Medical Discoveries to Better Prevent Childhood Diseases 10 Medulloblastoma – Finding Better Treatments for Brain Cancer 12 Introducing our Professorial Chair of Paediatric Radiology – Professor Derek Roebuck 14 Interventional Radiology – Cutting Edge Technology 16 Reducing the Itch – The Dermatology Eczema Project 18 Surgical Sam and the Role of Simulation Training 20 Fun On Four – The Healing Nature of Play The ArmeoSpring robotic armThis brings our total support in the past 21 years to $81 million with a further $28 million committed over the next five years. This funding ensures that our sick kids and young people continue to receive world class paediatric care. In the 2019 financial year our strategic focus on collaboration, innovation and impact saw us proudly fund Australian first medical equipment like a carbon floating imaging table used in the Hospital’s state of the art interventional surgical suite. This allows for the movement of patients into multiple positions while live imaging is carried out and makes complex surgical interventions more precise, increases patient safety and ultimately leads to shorter recovery times. The Foundation also funded an Australian first training mannequin that can portray respiratory difficulties and realistic skin tones and colour changes to enhance the effectiveness of neonatal and infant clinical training in the Hospital’s world class Simulation Suite. These are highly innovative additions to the Hospital, complementing the work of its outstanding clinicians and educators. The Foundation funded an array of ground breaking research in the past year that is discovering better ways to diagnose, treat and prevent childhood diseases like cancer, Cerebral Palsy, Diabetes and Cystic Fibrosis. We were also proud to fund a range of research into adolescent mental health as well as rare and undiagnosed childhood diseases. This critical research will have a significant impact on the future healthcare of our kids. The Foundation with the support of the Stan Perron Charitable Foundation funded the Hospital’s first ever Centre of Excellence for Childhood Burns, led by world renowned Professor Fiona Wood AM. This Centre will be a major international contributor to better understanding the long term effects of serious burns in children. The Foundation again supported critically important non clinical programs at Perth Children’s Hospital such as Art therapy, Music therapy and Play therapy that are making a significant difference to the ability of sick kids and young people to cope with the rigours of medical procedures and recover quicker. We are heartened by the regular patient and family feedback we receive about the wonderfully positive difference these programs are making to the kid’s stay at the Hospital. We are very proud of the impact we make on paediatric healthcare in WA. With the support of our donor partners we will continue to work very hard to ensure Perth Children’s Hospital and the Child and Adolescent Health Service has the support they need to provide the absolute very best health care to WA children and young people so they can lead healthier and happier lives. Mr Stan Perron AC We were deeply saddened by the passing of Mr Perron on 23 November 2018. Mr Perron made a massive contribution to children’s healthcare in WA and leaves a lasting legacy, the benefits of which will be felt for many, many years to come. We honour his tireless work and commitment. A Message from the Foundation Thanks to the wonderful generosity of our donors we were able to support Perth Children’s Hospital and the wider Child and Adolescent Health Service with grants totalling in excess of $6.5 million. 01 Hon. Ian Campbell Chairman Carrick Robinson CEO Annual Review 18/19 Perth Children’s Hospital FoundationWith the help of our generous donors, corporate partners and volunteers, our efforts will enable PCH and CAHS to ensure WA’s children and young people have access to world class care that comes from; • The most advanced equipment and technology • Ground breaking research • Innovative education and training programs • The expertise of highly trained experts from Australia and around the world and • Positive patient and family experiences. The Foundation and Who We Support Perth Children’s Hospital Foundation is the largest funder of Perth Children’s Hospital (PCH) and the wider Child and Adolescent Health Service (CAHS) after Government. Our purpose is to help transform the health care of WA’s sick children and young people so they can live their healthiest and happiest lives. 18% Securing the most innovative and advanced equipment and technology 22% Funding for pioneering ground breaking research 44% Investing in world class expertise 8% Investing in innovative education and training programs including scholarships 8% Enabling positive patient and family experiences Where your donations made an impact 02 Kai playing in Fun On FourHighlights Year in Review Together, we had a huge impact on sick kids and young people in WA with $6.5 million in grants to Perth Children’s Hospital and the wider Child and Adolescent Health Service. 03 56,690 Visits to Fun on Four 1,984 activities run by volunteers and staff (average of 38 p/w) 29,028 customers served at the Gift Shop $520,000 Funds raised by be giving at Dinner Under the Stars 1,600 2019 Euroz Big Walk participants raising over $160,000 11,731 Volunteer hours for 18/19 FY Based on the ABS volunteer rate of $33.71 p/h equates to $395,468.87 value 27 Research projects funded – totalled $1,545,781 million 17,600+ Facebook followers supporting the Foundation $135,450 Record-breaking total raised at the 2019 Market West Cherry Auction 32 Education & Training and Expertise grants funded – totalled $3,574,143 million 22 Pieces of innovative equipment were funded – over $1.1 million $1,084,315 Raised through the generosity of our appeal donors $30,000 Raised by 30 houses lighting up for Christmas Annual Review 18/19 Perth Children’s Hospital FoundationThe Foundation now has $28 million in future commitments over the next five years to support research projects, fund expertise and facilitate several longer term projects. These commitments are adequately covered by our investment reserves and donor pledges. A further $20 million is held in designated funds and available to specific areas of Perth Children’s Hospital, conditional upon terms specified by the original donors. Our fundraising income increased by 12% over the previous year which is a pleasing result in a difficult market. During the year, fundraising costs accounted for 25% of funds raised, lower than the previous year. We continue to focus on managing our fundraising costs and we have been able to reduce these from previous year levels. Despite continuing upward pressure on Administration expenses, we were able to cover these by investment income. This helps ensure that all donated funds, net of direct fundraising costs, are made available to the Hospital and wider Child and Adolescent Health Service. We now hold over $48.3 million in assets with the majority forming our investment portfolio. Our investments are managed in accordance with our Investment Policy Statement which ensures funds are allocated and managed in a way that provides broad diversification and low management costs without exposure to unrewarded risk. Further growth in our reserves places us in a strong position to continue to support Perth Children’s Hospital and the wider Child and Adolescent Health Service, while ensuring our ongoing financial stability. Strong financial stewardship We pride ourselves on ensuring that all funds generously donated are spent wisely to make a real and positive impact on child health care. To achieve this we employ a rigorous peer review process to vet all requests for funding. The first level of review is by the Executive Committee of the relevant health service – Perth Children’s Hospital, the Child and Adolescent Community Health Service, or the Child and Adolescent Mental Health Service. Upon agreement, the project meets the Foundation’s funding guidelines, the application is then reviewed by the Foundation Grant Sub-Committee, which comprises members of our Board. Finally, a request for funding over $20,000 requires the approval of the full Perth Children’s Hospital Foundation Board. In addition to establishing that each application provides a strong case outlining how it will improve health outcomes for children, the Foundation ensures that we are not being asked to fund something that the community would reasonably expect is the responsibility of Government, such as the routine replacement of equipment. The Foundation’s focus is on funding world class expertise, ground breaking research, positive patient experiences and cutting edge equipment and technology that the Child and Adolescent Health Service would not otherwise be able to access. We trust that our stewardship of the funding you provide meets your highest expectations, and gives you the confidence to continue your support. Financial Summary Thanks to the generosity of our supporters, the Foundation raised $9.43 million in the 2018/19 financial year. This enabled a total of over $6.5 million in grant payments to be made to the hospital and health service, a 30% increase year on year. 04 Maya painting in Fun On FourMiracle Miracle supporters have made a donation of $100,000 or more in the past financial year. Hero Hero supporters have made a donation of $50,000 or more in the past financial year. Aigle Royal Group Bank of Queensland Children’s Hospital Foundations Australia Denby Roberts Euroz Charitable Foundation Imagine Cruising WA Market West PCHF Emerging Leaders in Philanthropy The McCusker Charitable Foundation Tia & Chris Ellison Tony Ale & Co. Tony Galati & Spud Shed Family Champion Champion supporters have made a donation of $20,000 or more in the past financial year. Baiada Poultry Pty Ltd (Steggles) Baileys Group Event Hospitality & Entertainment Limited Globe BD Herbalife Nutrition Foundation Independence Group Jocelyn & John Gillett Laura Sanzone Linkforce Engineering Northern Star Resources PMH - Ex Trainee Nurses Association Putt4Dough Rotary Club of Boulder Sodexo Sweet Charity Op Shop Tronox Trust of Patrick Connolly Woodside Energy Star Star supporters have made a donation of $10,000 or more in the past financial year. AAA Metal Recycling Annunaziata Maio Audi Centre Perth Bailup Ford Farm Barbagallo Maserati Busby Family Fund CBH Group CommBank Foundation E.S.S. Entertainment Publications European Automotive Imports Gwen Allen Internation Bowling Club Ivan Bristow J P Stratton Trust Jackie & Leigh Ferguson June Yule Endowment Little Athletics - WA Little Folk Inc Livestock & Rural Transport Association of Western Australia Local BMX Michael Tichbon Pioneer Credit Limited Pozzi Financial Services REMONDIS Australia Rio Tinto Iron Ore Projects Charity Golf Event Partners (31) The Craig Family The Good Guys Support Centre The Honda Foundation Trust of Elizabeth Ann Bothwell Bequests Many kind people have remembered children cared for at PCH in their will. We thank our benefactors and their families. The legacy of their generosity will help thousands of children for years to come. Estates of: Cedric Broun Doug Schmidt Elizabeth Margaret Purnell May Isobell Hathaway Mrs E.Y.R. Chester Pauliene Albertha Fraser Raymond Joseph Clifford Rank Reginald Walker Thomas Caldwell Smith Yvette Hawley Gifts-in-Kind An extensive list of goods and services has kindly been donated by individuals and organisations, allowing us to save our hard- earned funds for the hospital. We thank everyone who has made a gift-in-kind donation. The following list acknowledges those whose donation was valued at $3,000 or more. @49 Hardy Beaumonde Catering Brinkhaus Jewellers Chemist Warehouse Crown Towers Dimattina Coffee Galleria Shopping Centre Hippocampus Hire Society Jackson McDonald Kott Gunning Laurent Perrier Moss Wood O&C Emporium OMG Events Paspaley Perth Golf Network Process Minerals PWC Royal Australian Navy Band Scott Print Thank You Jim Piercy 05 Annual Review 18/19 Perth Children’s Hospital Foundation273 89 Burns Unit admissions children admitted for scar revision 06 Matilda and Professor Fiona Wood, AM In 2018/19Romeo was three when he sustained burns to 80% of his tiny body during an overseas family holiday. The family decided that the best place for Romeo would be under the care of internationally renowned burns expert Professor Fiona Wood and her amazing team in Perth. Once the team had controlled Romeo’s infections, he was transitioned from bandaging to compression suits, specifically made to cover all of Romeo’s burns and protect his healing skin. As Romeo had spent an extended period of time in bed, unable to move without pain, he had to learn to balance and walk again and lift his arms above his head. Romeo faces a life time of treatment for the burn injury he sustained. The Stan Perron Centre of Excellence for Childhood Burns, funded by Perth Children’s Hospital Foundation donor, The Stan Perron Charitable Foundation, will provide essential expertise and knowledge of best practice to improve the long term health of children like Romeo. “Since our arrival at Perth Children’s Hospital we have admitted 273 children to the burn unit with acute burn injuries and 89 children have been admitted for scar revision including laser. This is addition to the children we see in the clinic and via telehealth. Those admitted are the more severe cases and often need surgeries to heal,” explains Professor Fiona Wood AM. “A burn injury is painful and happens in an instant – we know it is stressful for all involved and that the acute injury can have a lifelong impact with pain and itchy scars initially leading onto a range of secondary problems with growth and development.” “The Stan Perron Centre of Excellence gives us a unique opportunity to build on the work done to date to unravel the complexities of the acute burn so that we can limit the lifelong impact. By bringing together researchers and clinicians, I believe that children will greatly benefit from better interventions and treatment pathways to reduce the terrible outcomes of burn injuries.” “The impact of scarring from burns is life-long. In addition to physical and functional restrictions, children with visible scars often suffer from hidden scars - higher mortality rates from cardiovascular disease, diabetes and infection. They are also more vulnerable to cancer, mental illness and social isolation.” Thanks to the Foundation’s dedication to funding this centre, we are developing new treatments to improve the outcomes for young burn patients and establishing a model of care which flows into the community through education, prevention and first-aid training, aimed at reducing the lifelong impact of burn scarring and trauma. ––– PROFESSOR FIONA WOOD, AM The Stan Perron Centre of Excellence for Childhood Burns Discovering and healing the hidden scars The Centre’s goal will be to understand how burn injuries impact on long-term health, so it can improve the life trajectory of children with a burn injury. Annual Review 18/19 Perth Children’s Hospital Foundation 07Next >

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